Amplifying Global Voices for Duchenne
Voices4Duchenne is a global, community-driven initiative dedicated to advancing the rights, visibility, and well-being of people living with Duchenne muscular dystrophy and their families. Through advocacy, storytelling, and international cooperation, we work to elevate Duchenne on the world stage.
A Global Voice for Every Duchenne Journey
Voices4Duchenne is a global, community-driven initiative dedicated to advancing the rights, visibility, and well-being of people living with Duchenne muscular dystrophy and their families. Through advocacy, storytelling, and international cooperation, we work to elevate Duchenne on the world stage.
Duchenne Cannot Wait
Duchenne muscular dystrophy is a life-limiting genetic condition affecting thousands of children worldwide. It leads to progressive muscle degeneration, loss of mobility, and severe medical complications.
Yet for many families, access to diagnosis, treatment, and support remains unequal.
Duchenne is not only a medical challenge.
It is a...
Approximately
boys and men are living with DMD Globally.
About
new cases are diagnosed each year worldwide.
Approximetely
of boys require a wheelchair full-time.
World Duchenne Awareness Day
In 2025, the United Nations General Assembly adopted Resolution 78/12, formally recognizing World Duchenne Awareness Day.
This marked a critical shift:
Duchenne entered the global policy agenda. But recognition is only the beginning.
The Movement
Voices4Duchenne brings together:
Through documentary storytelling, global submissions, and policy engagement, the initiative transforms lived experience into structured advocacy.
Akanskh Gupta
Rishav Sarkar
Devarag Devanandan
Our Vision
Establish a comprehensive international framework or convention that protects the rights, needs, and dignity of people with Duchenne and rare diseases as a whole, grounded in principles of accessibility, inclusion, non-discrimination, and participation.
Join the Movement
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