Amplifying Global Voices for Duchenne
A global community-driven initiative advancing the rights and well-being of people living with Duchenne muscular dystrophy.
A Global Voice for Every Duchenne Journey
Voices4Duchenne is a global, community-driven initiative dedicated to advancing the rights, visibility, and well-being of people living with Duchenne muscular dystrophy and their families. Through advocacy, storytelling, and international cooperation, we work to elevate Duchenne on the world stage.
A Global Voice for Every Duchenne Journey
The UN has declared a global day to elevate Duchenne awareness and unite the world in support.
What is Duchenne?
Duchenne Muscular Dystrophy (DMD) is a rare progressive disorder. People with DMD are missing muscle-protecting protein. This is due to a fault in the gene producing dystrophin. Muscles to become weaker over time until it affects the whole body. It is caused by a mutation on the X-chromosome, that is why mainly males are affected.
Approximately
Boys and men are living with DMD Globally
About
new cases are diagnosed each year worldwide
Approximetely
of boys require a wheelchair full-time
Duchenne Stories Around the World
Voices4Duchenne is a global, community-driven initiative dedicated to advancing the rights, visibility, and well-being of people living with Duchenne muscular dystrophy and their families. Through advocacy, storytelling, and international cooperation, we work to elevate Duchenne on the world stage.
Our Vision
Establish a comprehensive international framework or convention that protects the rights, needs, and dignity of people with Duchenne and rare diseases as a whole, grounded in principles of accessibility, inclusion, non-discrimination, and participation.
Join the Movement
Become involved and stay up to date with all the latest news.